Stay at home and take care of Sam.
Make Sam's life as happy as possible.
Focus on the joys not the sorrow.
Pray, pray and pray that he doesn't suffer much.
Pray, pray and pray for a miracle ( if only he'll survive to sit in a wheelchair ).
Prepare for our goodbye.
When we do say goodbye remember that someday I'll see him again and get to kiss and hug him.
Still hardest thing to do is to let go...