Saturday, October 29, 2005
Make Sam's life as happy as possible.
Focus on the joys not the sorrow.
Pray, pray and pray that he doesn't suffer much.
Pray, pray and pray for a miracle ( if only he'll survive to sit in a wheelchair ).
Prepare for our goodbye.
When we do say goodbye remember that someday I'll see him again and get to kiss and hug him.
Still hardest thing to do is to let go...
"It's Sam. not anyone else. it's SMA, not something else. It's 18 months, and not a few years. We were explicitly told to expect death, and not just the "worst".
Of course we have faith, faith that God knows what his plans are for Sam, whether he takes him home early or not. Faith is not just about believing that God can, coz the truth is he always can. Faith is also about trusting that sometimes he won't, if that's His will, and faith is all about that: His will."
As my OB said, "Lord, Your Will. Nothing more, nothing less, nothing else."
I guess Mark must have removed his comment because he thought it sounded offensive of ungreatful. But its true. So I posted it without permission and hopefully he doesn't get mad... And I do hope you understand.
Wednesday, October 26, 2005
CHILDREN BORN WITH SPINAL MUSCULAR ATROPHY FACE A SHORT AND DIFFICULT LIFE. HOW THAT LIFE IS SPENT IS THE PARENTS' DIFFICULT DECISION. It is among the deadliest genetic disorders to strike children younger than 2. Yet most parents have never heard of spinal muscular atrophy....
Sam - Mommy and Papa loves you.
Friday, October 21, 2005
Wednesday, October 19, 2005
11. 43 things
12. Sam’s little tongue flickering in and out.
13. Being alone in a peaceful place with huge trees and a clear sky.
14. Window shopping.
15. A steaming bowl of sinigang with red hot siling labuyo on fish sauce.
2. Marseille – One of my friends said she’s doing 43things now i guess i also have towo find her here.
Thursday, October 13, 2005
Monday, October 10, 2005
So if you join 43things after reading this and seeing it for yourself please do tell me so I can start counting...
Saturday, October 08, 2005
“The most important thing she’d learned over the years was that there was no way to be a perfect mother and a million ways to be a good one.”
~ Jill Churchill
1. Chocolate Chip Cookies
2. Doing laps (very slowly) in a steaming swimming pool.
3. Reading books.
4. Tickling my hubby.
5. Clean sheets.
Part 2 … to come..
Tuesday, October 04, 2005
| You are a |
You are best described as a:
Link: The Politics Test on Ok Cupid
Also: The OkCupid Dating Persona Test